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Marfan Syndrome

How Is It Treated?

There are many different treatment options that can minimize and prevent complications. Individualized treatment programs for Marfan syndrome are available depending on which systems have been affected.

(Click Marfan Syndrome Treatment for more information about the treatment of this syndrome.)
 

Living With Marfan Syndrome

Living with Marfan syndrome can cause social, emotional, and financial stress. It often requires a great deal of adjustment in outlook and lifestyle. For both children and adults, appropriate medical care, accurate information, and social support are key to living with Marfan syndrome. Genetic counseling may also be helpful in understanding the disease and its potential impact on future generations.

(Click Living with Marfan Syndrome for more information about living with this disease.)
 

Prognosis

There is no cure for Marfan syndrome, and Marfan syndrome is a lifelong disorder. However, the outlook for people with Marfan syndrome has improved in recent years. With early diagnosis and appropriate management, the life expectancy for someone with Marfan syndrome is similar to that of the average person.
 
(Click Marfan Syndrome Prognosis for more information.)
 

Marfan Syndrome and Pregnancy

Pregnancy puts stress on the body, particularly the heart, which is why people with Marfan syndrome should be followed as a high-risk patient throughout their pregnancy.
 

Other Names for Marfan Syndrome

Other names for Marfan syndrome include:
 
  • Arachnodactyly
  • Marfan Syndrome, type 1
  • MFS.
 
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Marfan -- The Disease

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