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Marfan Syndrome Treatment

The Eyes
Early, regular eye examinations are the key to catching and correcting any vision problems associated with Marfan syndrome. Although eyeglasses and contact lenses can correct most vision problems, surgery may be necessary.
 
The Heart and Blood Vessels
Treatment for Marfan syndrome should include regular checkups and echocardiograms, which will help your doctor evaluate the size of the aorta and the way the heart is working. People with heart problems are encouraged to wear a medical alert bracelet and to go to the emergency room if they experience chest, back, or abdominal (stomach) pain.
 
Some heart valve problems can be treated with drugs, such as beta blockers, which may help decrease stress on the aorta. In other cases, treatment may involve surgery. The type of surgery to fix heart valve problems is called valve replacement or valve repair. Surgery should be performed before the aorta reaches a size that puts it at high risk for tear or rupture.
 
Following heart surgery, extreme care must be taken in order to prevent endocarditis (inflammation of the lining of the heart cavity and valves). You should tell your dentist if you have had heart surgery, because he or she will likely recommend that you be prescribed protective medicines before having dental work done.
 
The Nervous System
If dural ectasia (swelling of the covering of the spinal cord) develops in people with Marfan syndrome, treatment will include medication to help minimize pain.
 
The Lungs
People with Marfan syndrome should not smoke, because they are already at risk for lung damage. Also, a doctor should assess any problems with breathing during sleep, such as apnea.
 

Can Vitamins and Supplements Treat Marfan Syndrome?

Although eating a balanced diet is important for maintaining a healthy lifestyle, there are no vitamins or dietary supplements that have been shown to help slow, cure, prevent, or otherwise treat Marfan syndrome.
A Dose of Reassurance for Parents of Picky Eaters

Marfan -- The Disease

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